Thursday, December 03, 2009

About MS.....The Price of Reality...


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The Leaves have fallen now...all of them....and It is up to me to face some harsh Realities.

First off I need to say I am very very grateful that my son is growing up to be a Fine Young man and that he talks to me....and that he is a Thinking Caring Compassionate wise soul....and that he is and has been patient through all of this....and that his dad has been helping us get through a pretty miserable time....I am very thankful...and that is why I hate that my gratitude is so tarnished....

At some point I need to write about this....I need to let it out of my head...my heart...I need to find a way to fight it but still make peace with it...I need to find a way to have hope but make my way with this miserable companion.I have not a clue how to do any of those things...I have been the caregiver too long, I have no idea how to be anything else. How many years can I justify this lack of care ? Four? Five ? How long is too long ? 2005 seems like yesterday, it seems like 20 years ago.

The sad yet silly truth of it is- I have NO way to take care of it or deal with "It"- or even try to fight it. Not because I am not wise enough or brave enough, but because Corporate Entities have dictated my circumstances....I am UnInsured,Cancelled, soiled,spent,set aside like rotting garbage at a curb in my own country. How do I pretend to Understand or Explain THAT ? Or that it is happening to Millions of us ? How Can I say that it does not anger me?

During this Healthcare Battle I have been forced to examine much of my life has been manipulated and manhandled by Insurance Companies....and while working as a Nurse caring for hundreds of people, my own care was always rationed sparingly...It is senseless, demeaning, mind boggling. It means all that care I Gave meant Nothing in the scheme of things, that Giving Care is only meant for others, it has no value to the Bean Counters. Watching the DC Sausage Machine I was humiliated that suddenly the Costs of Healthcare were flung about the chambers like rotted vegetables. One GOP lawmaker said "that the Dems wanting to care for people was like watching a Wife let loose with a credit Card". And I watched Grassley quote Andrew Jackson- yes, the one president who died in 1845, and It gave new perspective to the phrase "Out of Touch". But the Corporations and the Lawmakers have Abandoned Humanity. And yes, abandoned millions of people just like me.

Can I face the next four years with No Insurance ?No real Medical Care? and No Chance of Insurance ? Is it right that I stay up night after night with THAT question banging through my brain,numbing my senses and wishing praying for another reality ? How many of us stay up night after night staring at a clock,listening to it tick, stealing time....the Worry Gift that it is. Time is no longer measured in Hours, it is measured in Dollars, and Lawmakers and Corporate Powers measure us in Dollars, not Life or Quality of Life. These past six months can not heal that perverse Reality.....

And I can not change that this reality hit after many monthes of watching HCR be haggled over like a grown hog....And hate mail that was beyond civilized,letters from those abroad questioning our Broken Country ( "What Kind of Country does not take care of it's People?" Your Healthcare System is like watching Katrina again" said a wise Scot)....I can not change that I had this Reality Correction during Thanksgiving, a time when I should be so grateful, and usually am....And I am left here angry,confused, dissillusioned.....like Millions of Americans....and deep down I think that What is Happening is Very UnAmerican.

Music to sooth...to heal..

Jakata....Seal and Thomas Newman...really stunning..."My Vision"

Monday, October 26, 2009

Autumn skies...


I came out of the market after getting Sunday groceries...and this site took my breath away....I don't think my cellphone totally captured the magic of that moment...
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And some Music...that matches my autumn mood. Kevin Montgomery...

His blog tells more about his music and where he is touring right now...West Coast ,Portland friends heads up...

Saturday, October 24, 2009

Thoughts for a wet soggy Friday....Random photos...and thoughts..


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First off, this "Tree" , which is now a 20ft Stump is right by my bedroom window...The story is that about a month ago, MrTeabaggeryAsswipe- my next door neighbor DID THIS to the tree right my window. Now I mention this because- a few weeks back, I was fast asleep and woke at 9am to a Chainsaw right by my head. I leaned out the window in all of my JustWokeUpGlory and yelled at Mr.Asswipe and his buddy who were Trimming ALL the Foilage by my House, and then I got dressed and called the cops on him.I had to explain to the cops WHY I thought having a "Neighbor" use Chainsaws by window was NOT ok??? Now the reason that I post this photo now.....well it turns out that it is a perfect perch for Mr and Mrs Cardinal and also for Skippy the FrontPorch Squirrel, so I am not as pissed as I was, and the cats LOVE that Critters come and sit for them.....So....a Happy Ending inspite of Mr.Asswipe...
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Leftover soup......It was cold...blustery and wet today....so out came the Dusty Crock Pot....And Leftover Soup...SanFran 49Cents CVS soup-1 can,cup of Organic Baby Carrots,1cup Boathouse Chai tea,can of carbanzo beans,half cup spaghetti sauce,2cups of old cooked cheese spinach Tortellini.,spices...etc...and after 2 hours...excellent....hmmmm...
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Munchkin Land..
So I live in a side-by-side....and this summer I decided that instead of having a garden or setting up my patio furniture ...I gave it to my neighbors....because they have two wee ones under 4....and this is how it looked most of the summer...every morning making tea I would look out and see what was happening or little people...Muchkin heaven...best thing I ever did....it was a gift to them...but also to me.....
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Thursday, October 22, 2009

This song is stuck in my head...Healthcare Battle song..

Moving Video from Marriage Equality Hearing in Maine...have kleenex

Friday, July 31, 2009

Song for a friend...far far away...


This song is for my friend so so far away, my best friend , he lives in Asia...and he always knows exactly when to call me..yesterday he called me when I was so so down and troubled....and somehow thousands of miles away he Knew....there is no way to thank such a gift...
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"Out beyond ideas of wrongdoing and rightdoing, there is a field. I will meet you there.” Rumi
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and.......

Saturday, June 27, 2009

Tribute to MJ...


I think he had a very troubled life..alot of pain ..incredible talent...I think he died of a Drug overdose...sadly...I hope they figure it out...because I watched Deppak speak about it on CNN and I think it's sad that as the only thing that relieved his pain...I wish the music could have healed him more..

Tuesday, June 16, 2009

June on the Porch....


A song for friend....dearest fran...we could sit on my porch drink something cool...and watch the son set and talk of our sons...

Ben Taylor "Let it Be"....

Sometimes I just need to escape and watch a good thunderstorm....

Time of the Season....Ben Taylor band...( the new kids version ...with a stormy sky..)